ET is back

Taking a look in the archives I found two posts that relate to ET — Essential Thrombocytosis. The first was entitled The Disorder Has a Name, written in 2010 when I discovered the name of my health issue. The second was entitled A Stroke in Life, written in 2012 after I had a minor stroke.

Reading them now I can see the errors in my words, but eight to ten years has passes, and I’ve learned more over the years.

My body makes platelets, too many platelets, and this causes a problem. It means that I am susceptible to having a stroke. We know that it’s true and I’ve already had a minor stroke. What I didn’t realise way back then, was that the six weeks of feeling incredible sick turned out to be eight months. I lost half my hair during that time. I lost a lot of weight. And I lost eight months of social interaction with family and friends, because I was too sick to go anywhere or do anything.

But that terrible time came to an end. I remained on the injections for a further two years, but life kick started again and things returned to a new normal that included injections twice a week.

Other stuff happened, the passing of my dad, mum being diagnosed with Alzheimer’s Disease, loss of a house to flooding, to name a few. It was a trumatic time.

Then, my specialist announced that I had to stop the injections or I might end up with a different medical problem. I remember feeling nervous about stopping the injections. Fancy that. But I gathered that should I stop the injection and the disorder return, then I would have to start at square one all over again. That thought terrified me.

Guess what? I’m standing on square one and I had my first injection on Friday (after almost five years without them).

But it has been almost five years, so improvements have been made to the medication. I haven’t been as bad this first time, but I’m only on a third of the normal injection at present. But I feel hopeful that my immediate future will not be a replay of 2012.

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